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's also terrible than leukemia, leukemia can bet, and we had no chance to even bet!" Lele's father, Mr. Tang introduced since mucopolysaccharidosis terrible. Mr. Tang's father beside supplement, but did not sit long, 78-year-old man got up and toward the back room. Soon, took out two framed pictures, "we say is this little guy," the old man look fondly looking at photos of grandchildren. This is a memorable boy: head particularly large, prominent forehead, wearing black-rimmed glasses, looking at camera shy. By the way, the child's head is also Dr. Dai Zhao cap. This is a child photography, most parents would choose props. Even the terminally ill,[url=http://www.bishopsboardshop.com/]doudoune moncler[/url], but the family still hope Lele and peers have the same tomorrow. At least two years ago, in addition to talking Lele little later, the difference is not large and peers. May 22, 2006, a few days ago because of an unexpected fall Lele, Mr. Tang took him to the Nanjing Children's Hospital film examination. Prior to give the child a bath, my mother has been found to have a central spine Lele back oval mass,[url=http://www.bar-get.com/webobject/community_tokyo/epad.cgi?del=9227]http://www.bar-get.com/webobject/community_tokyo/epad.cgi?del=9227[/url], a person worried about the child's condition faint. An hour later, the doctor hurriedly put the past couple shouting,[url=http://www.kit.hi-ho.ne.jp/cgi-bin/user/nobui/honey_n1.cgi]http://www.kit.hi-ho.ne.jp/cgi-bin/user/nobui/honey_n1.cgi[/url], and gravely asked the couple's physical condition, medical history of both families, and to solicit views of parents give their children an additional postural film project, Mr. Tang agreed. After another tough one hour, Mr. Tang was shouted the doctor's office, on the dazzling results of a single film to read "mucopolysaccharidosis." This is what most doctors never seen a disease, let alone therapeutic option. Mucopolysaccharides constitutes the connective tissues of our body, such as skin, bone, ligaments supporting structure of the main ingredients. Because patients lack an enzyme that makes mucopolysaccharide metabolism can not be carried out smoothly, so as to gradually damage the patient's organs. Mucopolysaccharides children in infancy with the normal child is no different, but in general, after the two-year-old will gradually appear exceptional rough face: the head is larger than normal, large tongue and thick lips, abdomen due to hepatosplenomegaly and organizations and prominent loose, stiff joints, intelligent gradual degradation ...... At present, none of the world to find an effective treatment of mucopolysaccharidosis of the party. Developed ways to use more bone marrow transplant, but generally occurs in patients with symptoms started before surgery. Symptoms, doctors recommend most to give up treatment, because even taken to surgery, and its success is highly unlikely. And because the surgical risk is extremely high, kids on the operating table, the parents most likely lose him forever thereon. At present, the domestic only Beijing,[url=http://www.pilnet.org/hco.php]hollister[/url], Shanghai, Guangzhou and other places can be treated mucopolysaccharidosis. With children removed three ran a year later, Mr. Tang had also expect "gamble", but because the symptoms have appeared Lele, missed the best timing of surgery, Mr. Tang had to recognize the reality painful to give up the child's treatment. Doctors said mucopolysaccharides patients rarely live over 15 years old. These bow to reporters, the Tang tears on the eye side. He worked in Nanjing, a large enterprise, and served as an important positions including import and export business. During the day, Mr. Tang spoke fluent English and international counterparts representations in control of the company's lifeblood; while home in the evening, in the face of their own powerlessness son. Huge contrast of life,[url=http://www.parcoaddasud.it/cli/moncler.php?p=27]moncler outlet[/url], so that Mr. Tang's eyes lost their original strength of spirit, and the people spoke, most of them looked down at his material, rarely confront each other's eyes. Tang's work unit in Jiangning, daily commutes have a very long time. In recent years,[url=http://wilfward.org.uk/forum/hollister.php]hollister outlet[/url], on his way home from work, the middle-aged men often sad Nan Yi was crying all the way. He became the "most undesirable" students due to illness unable to urinate every half hour to put their own pants,[url=http://www.xctcg.com/forum.php?mod=viewthread&tid=1590882&fromuid=53203]http://www.xctcg.com/forum.php?mod=viewthread&tid=1590882&fromuid=53203[/url], but also unable to control "hyperactivity" 7-year-old child, the complaint "made us unable to attend class" Lele totally did not know the big people sad. In this seven year old child's world, no rules,[url=http://www.jchs.com/includes/throwback-nfl-jerseys/]nfl jerseys[/url], no face, but do not know how delightful. Saw the thermos and the power outlet, Lele sometimes unconsciously touch, for these dangerous objects, the little boy was not afraid of instinct. His shy, timid, like a sheet of white paper in general. Special education schools from Xuanwu way home from school, listening to my aunt said Lele home to a reporter uncle, the little guy is interested, he can not wait to go home, while climbing stairs, she asked her aunt: "The uncle is not also wear glasses "Lele's home on the third floor, although their parents have a good job and income, but because these years to treat the child, the family still has three and 70-year-old grandparents squeeze in a old house . The same floor, four people's doors opened opposite, Lele home is easy to recognize, the other three are high-grade anti-theft doors, but only his family was the seventies and eighties of last century old iron gate. The door opened, a 1.2-meter-high, bespectacled boy standing in the doorway, do not look at their own reporters to force the bulk of Lele and prominent forehead. Little guy with a sheepish eyes looked reporter nose glasses, and then quickly out of the way. Lele listen aunt's instructions, whispered greeting: "Hello, uncle!" Later, he found the door stool reporter brings remote control car, the little boy suddenly rushed up: "wow!" - In addition to short stature half head except,[url=http://www.elemagic.com/matunoki/yybbs0/yybbs.cgi/yybbs.cgi]http://www.elemagic.com/matunoki/yybbs0/yybbs.cgi/yybbs.cgi[/url], it seems, Lele children's temperament and age there is no difference. Spent three years in kindergarten carefree moments later, in September last year, Lele into the home near the designated primary admission. Tang did not hide the child's condition, the child's condition and his treatment written a written statement provided to the school. He said he does not expect children to learn much knowledge, but hopes his son to have a full life experience. Like a normal child like school, life experience by Lele Tang as the most important part. Father beside nodded yes. When Lele's condition diagnosed, face crying the whole family,[url=http://www.tatemachi.net/event/joyful.cgi]http://www.tatemachi.net/event/joyful.cgi[/url], the veteran said: "Since he came into this world, the need to make our heart, to treat him!" Since then, "treat" has become a family Lele treat principle. Lele assigned a grade class, because of short stature, he sat in the front row of the classroom. But the school did not take long, my grandfather would pick Lele school teacher received a complaint: Lele often left their seats, still in the classroom to urinate, seriously affecting the teaching order. Lele is not in order to allow class time to urinate, he was not allowed to drink water every morning, breakfast with bread, buns and the like dry food mostly, but ineffective. Pick Lele, the grandfather often told: Today in class, Lele and peed in the classroom. Thus began the dwarves a poor little boy, it seems like more and more from classmates and teachers. Every day after school, I saw my grandfather came to pick Lele, innocent students will twitter "complain": "Today Lele has criticized the!" "He also ran a classroom full of pants, and made us no way to class," teacher is is angrily told the elderly. Many people do not know that urine is actually no way to control Lele. Mucopolysaccharidosis a direct expression is urinating more, Mr. Tang explained painfully,[url=http://www.stonehamchamber.org/scripts/]air jordan[/url], almost every half an hour, Lele will urinate once every 40-minute lesson, for it does seem a bit long Lele. As a classroom full of kids running pants that are a greater misunderstanding. Lele Tang took the hand to reporters, it was a pair of inwardly curved little hands can not be straightened because mucopolysaccharidosis, Lele particularly severe carpal tunnel syndrome, "which even mention his hands had no strength pants, He can not deliberately take your pants off. " Lele illness no waist, Tang determine the child's pants fell down, and He does not bother to mention, so the students thought he was bullying. As a classroom full of bare buttocks Lele run, to understand his son's father, judge: this may feel lonely and Lele related child does not complete expression, but there are emotional communication needs, a classroom full of running and finally attracted the whole class attention, mostly to get Lele usually hard to get in the class existence and identity. Learn more about these outsiders have no patience. In the classroom, slowly, from the first row of seats Lele moved to the last row. Other children's parents to boycott allowed to transfer his "trouble" attracted other kids parents unhappy parents make him a father find any seven-year-olds, but only normal IQ to special schools from the beginning of November last year, in order to does not affect other people, only half a day Lele lesson. Afternoon home, grandmother teach the language, a retired aunt to help teach mathematics. Grandpa had to find the school, expect to read with their parents, but the school refused. Lele's "trouble" did not stop, so parents and other students Lele parents, schools increasingly acute contradictions. Ultimately, this year on October 17, contradictions concentrated outbreak. 15:00 the same day, Mr. Tang notification by the principal, that is to communicate with parents and seventy-eight under, but came to the school conference room and found the class 29 students, in addition to several parents of something outside, came 24 parents of students. One into the conference room, Mr. Tang feel the unusual atmosphere, he said he was apologetic to go, after all,[url=http://www.pilnet.org/cl.php]louboutin pas cher[/url], Lele affects everyone. Some background information on the principals after the Tang sincerely to all parents introduce Lele and his suffering of mucopolysaccharidosis - he said he does not expect to get everyone's sympathy, but at least be able to win some understanding. Tang did not say a few words, and soon, sitting next to a matriarch president interrupted him, his tone very simply: "We have not come to listen to them, we want to hear how to do " "You do this to us children unfair ...... "" Our family did very well before her daughter, and now scores fall much ...... "" Your child is not further studies and employment pressures, and our children have; you put the child on the side, too selfish ...... "" From tomorrow onwards, no longer allow (Lele) into two (one) class, and can not afford to drag our children ...... "Like volley, several matriarch turns to speak, every word let Tang on pins and needles. So far, the parents will feel more like Tang struggle sessions, live he stubbornly responded: "You want commitment, how could I give you what it promises!" But in the end,[url=http://www.territoire-de-beaurepaire.fr/config/footer.php?p=69]doudoune moncler pas cher[/url], when the president announced several conference opinion to the effect that Lele will not be allowed into the classroom, the school will provide a reading room for one class, and so after Lele, Tang hastily promised target of public criticism, he anxious to flee the scene, "one minute do not want to stay longer." Special education school to become Lele no choice. Previously, several contacts and principals, principals, said: "In order to Lele happiness, special school may be his best place." And said, Xuanwu District special education school principal is their classmates, from which he can introduce . However, special education schools do not want to enter it into the. Schools need to provide proof of disability and intelligence, in addition to disability, the school enrolled students have IQs below 70. But Mr. Tang took the children in Nanjing Brain Hospital to do the test, Lele's IQ is 97, does not meet the special conditions of the school into the school. IQ tests done to Lele, Nanjing Brain Hospital Dr. Chen Tang couple put aside and vocal meal "swearword": "child IQ is no problem, you do the parents, why should give him wearing such a hat "Stand hospital corridor, fighting back stronger Tang suppress tears. To the parents called collective "strike" under the pressure of Xuanwu District Education Bureau involved in the matter, and ultimately coordinating Xuanwu District special education schools "on everything", recruit Lele school. Beginning from last Monday, Lele follow school third grade students enrolled, the class has five children: two autistic children, plus two children suffering from cerebral palsy Lele mucopolysaccharidosis. Although there is no self-esteem and logical analysis capabilities, Lele still perceive two different schools, before every night before going to sleep, the next day he would let her mother prepare textbooks and red scarf, but only on a special school for a week lessons, Lele is no longer clamoring to go to school, one day he even said to his mother: "I do not want to go to school." For Lele, the father is not all painful memories. Experts, children suffering from mucopolysaccharidosis have some special talent, he will concern most people do not concern. In addition to the map, the poet with interest,[url=http://xiaoyuanche.com/home.php?mod=space&uid=17235]http://xiaoyuanche.com/home.php?mod=space&uid=17235[/url], the most recent off bottle Lele particularly interested in home six bottles, he will follow its own criteria to sort them one by one. Water bottle no water, Lele is always the first to discover, jumping with joy that he told his father: "Dad, there is a bottle hungry!" Parties say ■ While other students parents off too harsh, but he also our kids bad lesson on how other parents cope with academic pressure collective opposition is leaving primary school Lele fuse. Parents say the same for parents, a very sympathetic beginning, but later children "often on bad lesson", taking into account the child's future academic pressure faced, I hope Lele's parents to care should be taken, both to Lele a better place for other students is also a quiet learning environment. In the two sides deadlocked on the occasion, the parents have joint letter to the Nanjing Bureau of Education. In the letter, the parents said that when the beginning of the class when Lele assigned to their children, many of his class moves on to everyone caused some impact, but after all, parenting, "a poor way to see the child always feel that if you let him go too harsh, so say wait and see,[url=http://www.stonehamchamber.org/scripts/]air jordan pas cher[/url], maybe then he would have been better. "from the first grade next semester, after several rounds of consultations, Lele every morning only to half a day. "But such a solution and did not play any good effects," the parents said Lele class is still noisy, second grade worse than even a year, "We hear every day the parents most is the child back home and told us that today we are not any lessons to complete, because Lele and wailed in the classroom. "So many parents find school leaders,[url=http://www.stonehamchamber.org/scripts/]air jordan femme[/url], and gives let Lele transfer, placement and other recommendations "After all our children in the future will face enormous pressure of school, if not lay the foundation elementary school when, in the future and how to face the fierce competition in society." ■ principals reluctant to give every child, but as a child or for 28 children, a dilemma more than 20 days ago,[url=http://www.territoire-de-beaurepaire.fr/config/footer.php?p=69]doudoune moncler[/url], "Lele incident" at the school wrangling, the talks collapsed because the parents, and some parents even have to "strike." The reporter interviewed the school principal has repeatedly expressed the "dilemma" situation. He said that this is in fact a child class and 28 children right balance. Chancellor, last year enrollment, the school had been informed of the special circumstances of the Lele, consider "do not give every child" principle, the school gave Lele issued the admission notice. But I never thought Lele enrollment, will lead to so many things come later. President introduced Lele there are several questions: in the classroom to urinate, sometimes school Shihai play "Little Sparrow"; often inferior, even out of the classroom; often tells students to borrow something, etc., affect learning. Principals said that teachers have reflected on these issues and more, and said that because a person Lele, resulting in the class courses are not completed on schedule. He said the school on Lele's condition is also very sympathetic, but can not because of a child and other children affected class. Some parents therefore complained to the Nanjing Bureau of Education,[url=http://mips-harima.co.jp/cgi-bin/C-002/keijiban/visit/main.pl?PAGE_NUM=1]http://mips-harima.co.jp/cgi-bin/C-002/keijiban/visit/main.pl?PAGE_NUM=1[/url], which makes the school very difficult. Chancellor did not explain the reasons why not allow parents to read with their parents, but said it will be under the leadership of Xuanwu District Education Bureau to properly solve this problem. ■ Lele father just wanted to let children experience the full life course do not want to let his short life, full of blame for why insist that children in the normal primary school enrollment, Mr. Tang explained: "just to let children experience the full life course." He said. the reporter contacted him before the interview, there was also a reporter phoned him, but on the phone, he reprove each meal. The large corporations with strong sense of self-defense, so he felt the other is for the love of many parents. In Tang's eyes, Lele despite suffering from an incurable disease, but as a parent he wants his son to fully experience life. While wiping away his tears while he said: "Since with him (Lele) have this fate, we must be worthy of him!" So, from small to large, as long as you want Lele, Mr. Tang couple always give everything. The couple is not low wages Lele all used in the body, cure, buy clothes, buy toys, etc., even colleagues in the unit, also known by fewer people dressed normally appear in front of them, "Don always", has also squeezed in his father's old dorm room. Unit hardship assistance every year, but never saw Mr. Tang requested. During the interview, Mr. Tang often said,[url=http://www.joy.hi-ho.ne.jp/cgi-bin/user/yuka-taku/yybbs.cgi]http://www.joy.hi-ho.ne.jp/cgi-bin/user/yuka-taku/yybbs.cgi[/url], Lele is a pure and children. In this seven-year-old boy in mind, no evil and bad guys, and he was facing from the parents began to grandfather, grandmother, aunt, etc., are the smiling faces. This has been to school after the "trouble", the next bit in the classroom to urinate, etc. disturb the students, perhaps in his world, which is not necessarily a bad thing. Mr. Tang said he would criticize Lele: "Today you and perform well, you have done something wrong," Lele would say know, but education ends here. Mr. Tang does not want kids brief life history, filled with too much advice and censure, he wanted the child to maintain his original white one state, flies happier. "You see, little children called 'Lele', meaning that way." Nickname referred to the origins of his son in more than seven hours of conversation, Mr. Tang rare earth smile. (To protect the privacy of the parties, the paper and school special real name withheld) ■ expect your voice a child and 28 children, "Tomorrow," How do we choice over seven hours of interview time, hiding in the back room to play Lele However, almost every 20 minutes, will be able to see this little boy out from the back room, humming a song to go pee. Adult world worried, sad, and he is altogether irrelevant. "They say we selfish, that our children do not further studies and employment pressure, not knowing ......" Tang painfully paused, "knowing that our children will face is born to live from the pressure!" Said Mr. Tang , mucopolysaccharide disease rarely live beyond 15 years, the couple had figured in uncertainty about times, looked up only to find that heartbreaking, just this little boy is only 7 years old, actually has gone through in his life half times. The face of a white child in general, not like normal school peers, for him, is a cruel fact repeat itself,[url=http://www.cravencountyhomes.com/louboutin_pas_cher.php]louboutin pas cher[/url], not to mention he was a destined to die in a few years, suffering from a rare disease patients; But another While, the child's future classmate 28 can be expected, parents' concern is not without reason. These parents are just determined to put aside the instinct of sympathy for the children to strive for a quiet study environment. Maybe you can blame the parents utilitarian, but this happened on any one person, with an estimated half past one would not think of a better way. As one parent said: "Yes, I sympathize with you, but I do not want their kids have such students." Sake of the children, both parents looks confidently. This dilemma makes heart entangled. Where is the best classroom Lele How to treat children with a rare encounter Lele School, both parents in the performance of this incident, how evaluation If you're one of the parties, how will you to solve similar conflicts Welcome readers call the newspaper hotline 025-96096 post your suggestions, views. I always feel that the wisdom of the people, the party can always find a solution. Gu Yue Fei

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